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Publications

DeltaQuest's projects yield publications, the primary currency in research, and these articles are published in a variety of professional journals. If you are interested in a particular article, please select the article from the subjects listed here to the left.

Please note that some articles are listed in more than one category.

Therapeutic Area

Asthma

Andenaes R, Schwartz CE. Anxiety mediates the effect of smoking on insomnia in people with asthma. Journal of Multidisciplinary Healthcare, 2016;9:21-28. DOI 10.2147/JMDH.598784.
Gandhi P, Schwartz CE, Reeve B, DeWalt D, Gross H, Huang IC. An item-level response shift study on the change of health state with the rating of asthma-specific quality of life: A report from the PROMIS Pediatric Asthma Study. Quality of Life Research, 2016; 25(6): 1349-1359.

Cancer

Schwartz CE, Daltroy L, Brandt U, Friedman R, and Stolbach L. A psychometric analysis of the Mental Adjustment to Cancer Scale. Psychological Medicine 1992;22:203-210.
Schwartz CE. Coping with chronic illness: The method of subtraction. Humane Medicine 1995, 11(3):104-105.
Schwartz CE, Feinberg RG, Jilinskaia E, and Applegate JC. An evaluation of a psychosocial intervention for survivors of childhood cancer: Paradoxical effects of response shift over time. Psycho-Oncology, 1999;8:344-354.
Astin J, Anton-Culver H, Schwartz CE, Shapiro DH, McQuade J, Breuer AM, Taylor T, Kurosaki T, and Lee H. A longitudinal study of sense of control and quality of life among women with breast cancer. Behavioral Medicine, 1999; 25:101-109.
Schwartz CE, Covino N, Morgantaler A, and DeWolf W. Quality-of-life after penile prosthesis placed at radical prostatectomy. Psychology and Health, An International Journal 2000;15:651-661.
Astin JA, Shapiro SL, Schwartz CE, and Shapiro DH. The multidimensional construct of control: Further commentary on Watson et al.\'s findings on fighting spirit and breast cancer [Letter]. Advances 2001;17:142-144.
Schwartz CE and David E. To everything there is a season: A written expression intervention for closure at the end of life. In: Lepore S and Smith J (Eds.), The Writing Cure, American Psychological Association: Washington, DC, 2002, 257-278.
Schwartz CE, Lennes I, Hammes B, Lapham C, Bottner W, and Ma Y. Honing an advance care planning intervention using qualitative analysis: The Living Well Interview. J Palliative Medicine 2003; 6(4):593-603.
Teschendorf B, Schwartz C, Ferrans CE, O\'Mara A, Novotny P, Sloan J. Caregiver role stress: When families become providers. Cancer Control: Journal of the Moffitt Cancer Center, 2007, 14(2): 183-189.
Taminiau-Bloem EF, van Zuuren FJ, Visser MRM, Tishelman C, Schwartz CE, Koeneman MA, Koning CCE, Sprangers MAG. Opening the black box of cancer patients' quality-of- life change assessments: a qualitative study examining the cognitive processes underlying responses to transition items. Psychology and Health 2011, 1-15, iFirst. DOI: 10.1080/08870446.2011.596203.
Visser, RM, Oort FJ, van Lanschot JB, van der Velden J, Kloek JJ, Gouma DJ, Schwartz CE, Sprangers MAG. The role of response shift in predicting bodily pain using the theoretical model of Sprangers and Schwartz. Psycho-Oncology 2013;22(3):515-522. DOI: 10.1002/pon.2114.
Taminiau-Bloem EF, van Zuuren FJ, Koeneman MA, Visser MRM, Tishelman C, Koning CCE, Schwartz CE, Sprangers MAG. Using a retrospective pretest instead of a conventional pretest is replacing biases: a qualitative study examining cognitive processes underlying responses to then-test items. Quality of Life Research, 2016; 25(6):1327-1337. DOI 10.1007/s11136-015-1175-4.
Rapkin BD, Weiss E, Michel T, Lounsbury D, Stevenson A, Erb-Downward J, Sabino E, Carpenter A, Schwartz CE, Bulone L, Goytia E, Kemeny M. Demonstrating population-level impact on cancer screening and prevention: Partnerships matter for reducing disparities. American Journal of Community Psychology, 2017; 60:1-15. DOI 10.1002/ajcp.12161.
Atkinson T, Schwartz CE, Li Y, Goldstein L, Garcia I, Bochner B, Rapkin BD. Perceptions of response burden associated with completion of patient-reported outcome assessments in oncology. Value in Health, 2019:22:225-230.
Rapkin BD, Schwartz CE. Garcia I, Reaves BC, Goldstein L, Zhang J, Atkinson T, Li Y, Michael W, Sankin A, Schoenberg M, Cortese M, Hopkins U, Lerner S, Bochner B. Testing New Ways to Measure How Patients Rate Quality of Life. Washington, DC: Patient-Centered Outcomes Research Institute (PCORI), 2020. https://doi.org/10.25302/03.2020.ME.130600781.
Schwartz CE, Rapkin BD. Double-blinded is not better than 'mutually enlightened': Implications of Lord-Besson et al. Invited editorial, JNCI Cancer Spectrum, 2023: February 23. DOI https://doi.org/10.1093/jncics/pkad013.
Huang IC, Sim JA, Srivastava DK, Krull KR, Ness KK, Robison LL, Baker JN, Hudson MM, Schwartz CE. Response-shift effects in childhood cancer survivors: A prospective study. Psycho-Oncology 2023: 1-11. DOI: https://doi.org/10.1002/pon.6150.
Schwartz CE, Rapkin BD. Impact of comorbidities on people with and without cancer early in the COVID-19 pandemic: An observational study. Cancer Medicine, 2023; 00:1-11. DOI: https://doi.org/10.1002/cam4.6212.

Cystic Fibrosis

Bartley, B., Schwartz CE, Stark RB, Yonker L. Factors influencing the timing of referral to lung transplant: A regional survey of cystic fibrosis providers and pulmonary specialists. BMC Pulmonary Medicine, 2020; 20:58. DOI: 10.1186/s12890-020-1067-4.
Friedman D, Smith B, Bruce A, Schwartz CE, Lee H, Pinksy H, Gootkind E, Hardcastle M, Shea N, Roach C, Miller C, Pollineni D, Salathe M, Quittner A, Geiogiopoulos A. Feasibility and acceptability of a CF-specific cognitive-behavioral preventive intervention integrated into team-based care for adults with Cystic Fibrosis. Pediatric Pulmonology, 2022;1-10. DOI: 10.1002/ppul.26101.

Depression

Lenert LA, Treadwell JR, and Schwartz CE. Associations between health status and utilities: Implications for policy. Medical Care 1999;37:479-489.
Friedman D, Smith B, Bruce A, Schwartz CE, Lee H, Pinksy H, Gootkind E, Hardcastle M, Shea N, Roach C, Miller C, Pollineni D, Salathe M, Quittner A, Geiogiopoulos A. Feasibility and acceptability of a CF-specific cognitive-behavioral preventive intervention integrated into team-based care for adults with Cystic Fibrosis. Pediatric Pulmonology, 2022;1-10. DOI: 10.1002/ppul.26101.
Schwartz CE, Borowiec K, Rapkin BD. Depression trajectories during the COVID-19 pandemic: Impact of cognitive appraisal processes. Journal of Patient-Reported Outcomes, 2023;7(67). DOI: https://doi.org/10.1186/s41687-023-00600-z.
Schwartz CE, Borowiec K, Li, Y, Rapkin BD. Individual differences in the long-term impact of the pandemic: Moderators of COVID-related hardship, worry, and social support. Quality of Life Research. Published online January 6, 2024. DOI: https://doi.org/10.1007/s11136-023-03573-0.
Schwartz CE, Borowiec K. Reserve-building as a buffer of depression among people living with disability. Frontiers in Psychology, section Health Psychology, 2024 in press.

Diabetes

Polonsky WH, Anderson BJ, Lohrer PA, Welch G, Jacobson AM, Aponte JE, and Schwartz CE. Assessment of diabetes-related distress. Diabetes Care 1995;18(6):754-760.
Schwartz CE, Welch G, Santiago-Kelley P, Bode R, Sun X. Computerized adaptive testing of diabetes impact: A feasibility study of Hispanics and non-Hispanics in an active clinic population. Quality of Life Research 2006; 15:1503-1518.
Welch GW, Schwartz CE, Santiago-Kelly P, Garb J, Shayne R. Differences in diabetes-related emotional distress between Hispanic and Non-Hispanic type 2 diabetes patients attending a community health center. Ethnicity and Disease 2007; 17:543-547.
Lounsbury D, Hirsch G, Vega C, Schwartz CE. Understanding social forces involved in diabetes outcomes: A system science approach to quality-of-life research. Quality of Life Research, 2013 DOI 10.1007/s11136-013-0532-4.
Ahmed S, Sawetsky R, Levesque JF, Ermann-Feldman D., Schwartz CE. Minimal Response Shift in the Absence of a Catalyst. Quality of Life Research, 2014. DOI 10.1007/s11136-014-0699-3.

Disability

Schwartz CE, Andresen E, Nosek M, Krahn G, and the RRTC Expert Panel on Health Status Measurement. Response shift theory: Important implications for measuring quality of life in individuals with disability. Archives of Physical Medicine and Rehabilitation, 2007; 88(4): 529-536.
Bell NS, Schwartz CE, Harford T, Hollander IE, Amoroso PJ. Temporal changes in the nature of disability: U.S. Army soldiers discharged with disability, 1981-2005. Disability and Health Journal, 2008 (1): 14-24.
Bell NS, Schwartz CE, Harford T, Hollander IE, Amoroso PJ. The changing profile of disability in the U.S. Army: 1981 - 2005. Disability and Health Journal, 2008 (1): 14-24.
Schwartz CE. Applications of response shift theory and methods to participation measurement: A brief history of a young field. Invited manuscript for the Archives of Physical Medicine and Rehabilitation 2010; 91(9), Suppl 1: S38-S43. Barclay-Goddard R, King J, Dubouloz CJ, Schwartz CE. Building on transformative learning theory and response shift theory to investigate changes in health-related quality of life over time in individuals with chronic health conditions and disability. Archives of Physical Medicine and Rehabilitation, 2012; 93(2): 214-220.
Rivers CS, Fallah N, Noonan VK, Whitehurst DGT, Schwartz CE, Finkelstein JA, Craven BC, Ethans K, O’Connell C, Truchon C, Ho C, Linassi AG, Short C, Tsai E, Drew B, Ahn H, Dvorak MF, Paquet, J, Fehlings MG, Noreau L, for the RHSCIR Network. Secondary health conditions: impact on function, health-related quality of life, and life satisfaction following traumatic spinal cord injury. Archives of Physical Medicine and Rehabilitation 2018;99(3):443-451.
Schwartz CE, Stucky BD, Rivers CS, Noonan VK, Finkelstein JA. Quality of life and adaptation in people with spinal cord injury: Response shift effects five-years post-injury. Archives of Physical Medicine and Rehabilitation, 2018; 99:1599-1608.
King J, Barclay R, Ripat J, Dubouloz CJ, Schwartz CE. An investigation of occupational therapists’ and physical therapists’ perspectives of the process of change that occurs in their clients during rehabilitation including their use of response shift and transformative learning. Physiotherapy Canada 2019 Jun 21(aop):1-2.
Schwartz CE, Stark RB, Borowiec K, Audhya IF, Gooch KL. I Interplay of disability, caregiver impact, and out-of-pocket expenditures in Duchenne Muscular Dystrophy: A cohort study. Journal of Patient-Reported Outcomes, 2022;6:21. DOI: https://doi.org/10.1186/s41687-022-00425-2.
Schwartz CE, Stark RB, Borowiec K, Rapkin BD. Drivers of caregiver burden in Duchenne Muscular Dystrophy: A cohort study. Journal of Patient-Reported Outcomes, 2022; 6:22. DOI: https://doi.org/10.1186/s41687-022-00421-6.
Schwartz CE, Rapkin BD, Bonavita S, Bossa M, Buscarinu MC, Grasso MG, Luca M, Nozzolillo A, Nocentini I, on behalf of the MS COVID Resilience Italian Study Group. The impact of COVID-19 on people with multiple sclerosis: A comparison of Italian and United States cohorts. Multiple Sclerosis and Related Disorders, 2022:63, 103888. DOI: a href=https://doi.org/10.1016/j.msard.2022.103888 target=\'_blank\'>https://doi.org/10.1016/j.msard.2022.103888.
Schwartz CE, Rapkin BD, Sniderman J, Finkelstein JA. Appraisal and patient-reported outcomes following total hip arthroplasty: A longitudinal cohort study. Journal of Patient-Reported Outcomes, 2022;6:93. DOI: https://doi.org/10.1186/s41687-022-00498-z.
Schwartz CE, Biletch E, Stuart RBB, Rapkin BD. I Patient Aspirations in the context of Duchenne Muscular Dystrophy: A mixed-methods case-control study. Journal of Patient-Reported Outcomes, 2022; 6:97. DOI: https://doi.org/10.1186/s41687-022-00500-8.
Schwartz CE, Biletch E, Stuart RBB, Rapkin BD. I Siblings’ Aspirations in the context of Duchenne Muscular Dystrophy: A mixed-methods case-control study. Journal of Patient-Reported Outcomes, 2022; 6:96. DOI: https://doi.org/10.1186/s41687-022-00501-7.
Schwartz CE, Rapkin BD, Borowiec K, Finkelstein JA. Cognitive processes during recovery: Moving toward personalized spine surgery outcomes. Journal of Personalized Medicine, 2022, 12, 1545. DOI: https://doi.org/10.3390/jpm12101545.
Balasuberamaniam P, Wasim A, Shrikumar M, Chen T, Anthony T, Phillips A, Nathens A, Chapman M, Crawford E, Schwartz CE, Finkelstein JA. Predictors of sacral ulcers in patients with complete spinal cord injury: A case-control study. BMC Musculoskeletal Disorders, 2023; 24:239. DOI:10.1186/s12891-023-06369-y.
Schwartz CE, Borowiec K. Reserve-building as a buffer of depression among people living with disability. Frontiers in Psychology, section Health Psychology, 2024 in press.

Duchenne Muscular Dystrophy

Schwartz CE, Stark RB, Audhya IF, Gooch KL. Characterizing the impact of Duchenne Muscular Dystrophy on caregivers: A case-control investigation. Journal of Patient-Reported Outcomes, 2021; 5:124. DOI: https://doi.org/10.1186/s41687-021-00386-y.
Schwartz CE, Stark RB, Cella D, Borowiec K, Gooch KL, Audhya IF. Measuring disability comprehensively in Duchenne Muscular Dystrophy: Development of a proxy-reported measure derived from PROMIS item banks. Orphanet Journal of Rare Diseases, 2021;16:487. DOI: https://doi.org/10.1186/s13023-021-02114-7.
Schwartz CE, Stark RB, Borowiec K, Audhya IF, Gooch KL. I Interplay of disability, caregiver impact, and out-of-pocket expenditures in Duchenne Muscular Dystrophy: A cohort study. Journal of Patient-Reported Outcomes, 2022;6:21. DOI: https://doi.org/10.1186/s41687-022-00425-2.
Schwartz CE, Stark RB, Borowiec K, Rapkin BD. Drivers of caregiver burden in Duchenne Muscular Dystrophy: A cohort study. Journal of Patient-Reported Outcomes, 2022; 6:22. DOI: https://doi.org/10.1186/s41687-022-00421-6.
Schwartz CE, Stark RB, Biletch E, Stuart RBB, Li Y. Comparing human coding to two natural language processing algorithms in aspirations of people affected by Duchenne Muscular Dystrophy. Journal of Methods and Measurement in the Social Sciences, 2022; 13: (1):15-40.
Schwartz CE, Biletch E, Stuart RBB, Rapkin BD. I Patient Aspirations in the context of Duchenne Muscular Dystrophy: A mixed-methods case-control study. Journal of Patient-Reported Outcomes, 2022; 6:97. DOI: https://doi.org/10.1186/s41687-022-00500-8.
Schwartz CE, Biletch E, Stuart RBB, Rapkin BD. I Siblings’ Aspirations in the context of Duchenne Muscular Dystrophy: A mixed-methods case-control study. Journal of Patient-Reported Outcomes, 2022; 6:96. DOI: https://doi.org/10.1186/s41687-022-00501-7.
Schwartz CE, Jackson, S., Valentine, J., Miller, N., Lowes, L., Edwards, D., McSherry, C., Savva, D., Lowe, A., McSherry, J., Engel, P. Toward patient-centered treatment goals for Duchenne Muscular Dystrophy: Insights from the "Your Voice" study. Orphanet Journal of Rare Diseases, 2023 18:90. DOI: https://doi.org/10.1186/s13023-023-02674-w.

Epilepsy

Schwartz CE, Cole B, Vickrey B, and Gelber, R. The Q-TWiST approach for assessing health-related quality of life in epilepsy. Quality of Life Research 1995;4(2):135-141.

Gastrointestinal Disorders

Schwartz CE, Borowiec K. Development and validation of the HDSIM™ assessment system: A measure of hemorrhoid disease symptom impact. Quality of Life Research, 2024 in press.

Geriatrics

Schwartz, CE. Coping with Chronic Illness. [Doctoral Dissertation]. Boston, MA: Harvard School of Public Health, 1990.
Schwartz CE, Ozminkowski RJ, Hoaglin DC, Cella M, and Branch LG. Can a survey effect quality of care in nursing homes? The influence of the New York Quality Assurance Survey on resident deterioration and adverse outcomes. Journal of Aging and Health 1994; 6(4):549-572.
Ozminkowski RJ, Cella M, Branch LG, and Schwartz CE. The influence of the New York Quality Assurance Survey on case mix index in nursing homes. Journal of Aging and Health 1994;6(3):377-396.
Schwartz CE, Peng CK, Lester N, Daltroy L, and Goldberger A. Coping behavior in health and disease: Assessment with a card sort game. Behavioral Medicine 1998;24(1):41-44.
Schwartz CE and Daltroy LH. Learning from unreliability: The importance of inconsistency in coping dynamics. Social Science and Medicine 1999;48:619-631.
Schwartz CE, Wheeler, HB, Hammes B, Basque N, Edmunds J, Reed G, Ma Y, Li L, Tabloski P, Yanko Y, and the UMass End-of-Life Working Group. Early Intervention in Planning End-of-Life Care with Ambulatory Geriatric Patients: Results of a Pilot Trial. Archives of Internal Medicine 2002;162:1611-1618.
Seton M, Moses AM, Bode RK, Schwartz CE. Paget\'s disease of bone: the skeletal distribution, complications and quality of life as perceived by patients.
Steinerman JR, Lipton RB, Rapkin BD, Quaranto BR, Schwartz CE. Factors associated with openness to research participation (ORP) in an aging community: The importance of technophilia and social cohesion. Gerontechnology 2013;11(4):504-512. doi:10.4017/gt.2013.11.4.012.00

Heart Disease

Stengrevics SS, Sirois C, Schwartz CE, Friedman R, and Domar AD. The prediction of cardiac surgery outcome based upon preoperative psychological factors. J Psychology and Health 1996; 11 (4): 471-477.
Ahmed S, Sawetsky R, Levesque JF, Ermann-Feldman D., Schwartz CE. Minimal Response Shift in the Absence of a Catalyst. Quality of Life Research, 2014. DOI 10.1007/s11136-014-0699-3.

Hemophilia / Blood Disorders

Schwartz CE, Powell VE, Eldar-Lissai A. Measuring hemophilia caregiver burden: Validation of the Hemophilia Caregiver Impact measure. Quality of Life Research, 2017: 26(9):2551-2562. DOI 10.1007/s11136-017-1572-y.
Schwartz CE, Powell VE, Su J, Zhang J, Eldar-Lissai A. The impact of extended half-life versus conventional factor product on hemophilia caregiver burden. Quality of Life Research, 2018; 27(5):1335-1345.
Schwartz CE, Zhang J, Su J. Longitudinal construct validity of the Hemophilia Caregiver Impact Measure. Quality of Life Research, 2019; published online first 22 March 2019. DOI: 10.1007/s11136-019-02168-y.
Schwartz CE, Stark RB, Stucky BD, Michael W, Rapkin BD. Positive emotions despite substantial burden: The alchemy of hemophilia caregiving. Haemophilia, 2020; 26:86-96. DOI: 10.1111/hae.13874.
Schwartz CE, Stark RB, Michael W, Rapkin BD. Understanding hemophilia caregiver burden: Does appraisal buffer the impact of hemophilia on caregivers over time? Psychology and Health, 2020: 1-15. DOI: 10.1080/08870446.2020.1766042.
Schwartz CE, Stark RB, Borowiec K, Nolte S, Myren KJ. Norm-based comparison of the quality-of-life impact of Ravulizumab and Eculizumab in Paroxysmal Nocturnal Hemoglobinuria. Orphanet Journal of Rare Diseases, 2021;16:389. https://doi.org/10.1186/s13023-021-02016-8.
Schwartz CE, Stark RB, Borowiec K, Myren KJ. No impact of Asian ethnicity on EORTC QLQ-C30 scores: Assessing group differences and differential item functioning in a clinical trial on paroxysmal nocturnal hemoglobinuria. Health and Quality of Life Outcomes, 2021; 19:338. https://doi.org/10.1186/s12955-021-01860-3.

HIV

Schwartz CE, Rapkin BD. Understanding Appraisal Processes Underlying the Thentest: A Mixed Methods Investigation. Quality of Life Research, 2011. DOI 10.1007/s11136-011-0023-4.

Lupus

Schwartz, CE. Coping with Chronic Illness. [Doctoral Dissertation]. Boston, MA: Harvard School of Public Health, 1990.
Schwartz CE, Peng CK, Lester N, Daltroy L, and Goldberger A. Coping behavior in health and disease: Assessment with a card sort game. Behavioral Medicine 1998;24(1):41-44.
Schwartz CE and Daltroy LH. Learning from unreliability: The importance of inconsistency in coping dynamics. Social Science and Medicine 1999;48:619-631.

Multiple Sclerosis

Schwartz CE and Fierston S. The two sides of pseudo-bulbar disorder in multiple sclerosis: Comparing one patient\'s experience with a review of the neurologic literature. Neurorehabilitation 1995;5:359-365.
Schwartz CE. Coping with chronic illness: The method of subtraction. Humane Medicine 1995, 11(3):104-105.
Schwartz CE, Cole BF, and Gelber RD. Measuring patient-centered outcomes in neurologic disease: Extending the Q-TWiST methodology. Archives of Neurology 1995;52:754-762.
Schwartz CE and Fox B. Who says yes? Identifying selection biases in a psychosocial intervention study of multiple sclerosis. Social Science and Medicine 1995;40(3):359-370.
Schwartz CE, Coulthard-Morris L, Zeng Q, and Retzlaff P. Measuring self-efficacy in people with multiple sclerosis: A validation study. Archives of Physical Medicine and Rehabilitation 1996;77: 394-398.
Schwartz CE, Coulthard-Morris L, and Zeng Q. Psychosocial correlates of fatigue in people with multiple sclerosis. Archives of Physical Medicine and Rehabilitation 1996;77: 165-170.
Schwartz CE, Kozora E, and Zeng Q. Towards patient collaboration in cognitive assessment: Specificity, sensitivity, and incremental validity of self-report. Annals of Behavioral Medicine 1996:18(3):177-184. Schwartz CE, Coulthard-Morris L, Cole B, and Vollmer T. The quality-of-life effects of Interferon-β-1b in multiple sclerosis: An Extended Q-TWiST analysis. Archives of Neurology 1997;54:1475-1480.
Schwartz CE, Peng CK, Lester N, Daltroy L, and Goldberger A. Self-repoerted coping behavior in health and disease: Assessment with a card sort game. Behavioral Medicine 1998;24(1):41-44.
Schwartz CE, Brotman S, LaRocca N, and Lee H. Patient perception of quality of care provided by specialists and generalists. Multiple Sclerosis 1998;4:426-432.
Schwartz CE. Teaching coping skills enhances quality of life more than peer support: Results of a randomized trial with multiple sclerosis patients. Health Psychology 1999; 18(3):211-220.
Schwartz CE and Sendor M. Helping others helps oneself: Response shift effects in peer support. Social Science and Medicine 1999; 48(11):1563-1575.
Schwartz CE and Daltroy LH. Learning from unreliability: The importance of inconsistency in coping dynamics. Social Science and Medicine 1999;48:619-631.
Schwartz CE, Laitin E, Brotman S, and LaRocca N. Utilization of Unconventional Treatments by Persons with MS: Is it alternative or complementary? Neurology 1999; 52:626-629.
Schwartz CE, Vollmer T, Lee H, and the North American Research Consortium on MS. Reliability and Validity of Two Self-report Measures of Impairment and Disability for MS. Neurology 1999;52:63-70.
Schwartz CE, Foley FW, Rao SM, Bernardin LJ, Lee H, and Genderson MW. Stress and course of disease in multiple sclerosis. Behavioral Medicine, 1999;25:110-116.
Brown MG, Murray TJ, Sketris IS, Fisk JD, LeBlanc JC, Schwartz CE, Skedgel C. Cost/effectiveness of interferon-β-1b in slowing multiple sclerosis disability progression: First estimates. J Technology Assessment in Health Care 2000;16:751-767.
Schwartz CE, Sprangers MAG, Carey A, and Reed G. Exploring response shift in longitudinal data. Psychology and Health, 2004; 19(1): 51-69.
Motl R, Schwartz CE, and Vollmer T. Continued Validation of the Symptom Inventory in Multiple Sclerosis. Journal of the Neurological Sciences, 2009; 285: 134–136.
Schwartz CE, Sprangers MAG, Ahmed S, Bode R, Li Y, Oort FJ, Vollmer T. Response Shift in Patients with Multiple Sclerosis: An Application of Three Statistical Techniques. Quality of Life Research, 2011;20(10):1561-1572. DOI 10.1007/s11136-011-0056-8.
Li Y and Schwartz CE. Data mining for response shift patterns using recursive partitioning tree analysis. Quality of Life Research, 2011; 20(10):1543-1553. DOI 10.1007/s11136-011-0004-7.
Ahmed S, Mayo N, Scott S, Kuspinar A, Hum S, Schwartz CE. Using Latent Trajectory Analysis to Detect Response Shift in General Health among Multiple Sclerosis Patients. Quality of Life Research, 2011. DOI 10.1007/s11136-011-0005-6.
King-Kallimanis BL, Oort, FJ, Nolte S, Schwartz CE, Sprangers MAG. Using structural equation modeling to detect response shift in performance and quality of life scores of multiple sclerosis patients. Quality of Life Research, 2011:20(10):1527-1540. DOI 10.1007/s11136-010-9844-9.
Schwartz CE, Bode RK, Vollmer T. The Symptom Inventory disability-specific short-forms for multiple sclerosis: Reliability and factor structure. (Archives of Physical Medicine and Rehabilitation 2012; 93(9): 1629-1636.),
Schwartz CE, Bode RK, Quaranto, BR, Vollmer T. The Symptom Inventory disability-specific short-forms for multiple sclerosis: Construct validity, responsiveness, and interpretation. Archives of Physical Medicine and Rehabilitation, 2012; 93(9): 1617-1628.
Schwartz CE, Snook E, Quaranto BR, Benedict RB, Vollmer T. Cognitive Reserve and Patient-Reported Outcomes in Multiple Sclerosis. MS Journal 2013; 19(1):87-105.
Schwartz CE, Snook E, Quaranto BR, Benedict RB, Rapkin BD, Vollmer T. Cognitive Reserve and Appraisal in Multiple Sclerosis. ,I>MS and Related Disorders, 2013; 2:36-44.
Schwartz CE, Quaranto BR, Healy BC, Benedict RH, Vollmer T. Altruism and health outcomes in multiple sclerosis: The effect of cognitive reserve. Journal of Positive Psychology, 2013; 8(2):144-152. DOI: 10.1080/17439760.2013.776621.
Booth AJ, Rodgers JD, Schwartz CE, Quaranto BR, Weinstock-Guttman B, Zivadinov R, Benedict RHB. Active Cognitive Reserve Influences the Regional Atrophy to Cognition Link. Journal of the International Neuropsychological Society, 2013;19:1-6. DOI 10.1017/S1355617713001082.
Benedict RHB, Schwartz CE, Duberstein P, Hoogs M, Dwyer M, Zivadinov R, Weinstock-Guttman M. Personality Traits and the Effects of Brain Atrophy on Neuropsychiatric Features in Multiple Sclerosis. Psychosomatic Medicine, 2013 75:253-261.
Schwartz CE, Quaranto BR, Healy BC, Benedict, RHB, Vollmer T. Cognitive reserve and symptom experience in multiple sclerosis: A buffer to disability progression over time? Archives of Physical Medicine and Rehabilitation, 2013;94:1971-81.
Schwartz CE, Quaranto BR, Rapkin BD, Healy BC, Vollmer T, Sprangers MAG. Fluctuations in appraisal over time in the context of stable and non-stable health. Quality of Life Research, 2014; 23(1):9-19.. DOI 10.1007/s11136-013-0471-0.
Schwartz CE, Ayandeh A, Motl RW. Investigating the minimal important difference in ambulation in multiple sclerosis: A disconnect between performance-based and patient-reported outcomes? Journal of Neurological Sciences. 2014;347:268-274.
Schwartz CE, Ayandeh A, Rodgers J, Duberstein P, Weinstock-Guttman B, Benedict RHB. A new perspective on proxy report: Investigating implicit processes of understanding through patient-proxy congruence. Quality of Life Research, 2015 ; 24(11):2637-2649. DOI 10.1007/s11136-015-1017-4.
Schwartz CE, Ayandeh A, Benedict RHB, Weinstock-Guttman B, Ramanathan M, Dwyer M, Zivadinov R. Reserve-building activities in multiple sclerosis patients and healthy controls: A descriptive study. BMC Neurology, 2015, 15:135. DOI:10.1186/s12883-015-0395-0.
Rapkin BD and Schwartz CE. Distilling the essence of appraisal: A mixed methods study of people with multiple sclerosis. Quality of Life Research, 2016:25(4):793-805; 807-810. 10.1007/s11136-015-1119-z.
Schwartz CE, Li J, Rapkin BD. Refining a web-based goal assessment interview: Item reduction based on reliability and predictive validity. Quality of Life Research, 2016; 25(9):2201-2212.1-12. DOI: 10.1007/s11136-016-1258-x.
Sandroff B, Schwartz CE, and DeLuca J. Measurement and maintenance of reserve in multiple sclerosis: a review. Journal of Neurology 2016: 263(11):2158-2169. DOI: 10.1007/s00415-016-8104-5.
Roy S., Schwartz CE, Duberstein P, Dwyer MG, Zivadinov R, Bergsland N, Weinstock-Guttman B, Powell VE, Benedict RHB. Synergistic effects of reserve and adaptive personality in multiple sclerosis. Journal of the International Neuropsychological Society, 2016;22:1-8.
Schwartz CE, Dwyer MG, Benedict RHB, Weinstock-Guttman B, Bergsland NP, Li J, Ramanathan M, Zivadinov R. Reserve-building activities and MRI metrics in multiple sclerosis patients and healthy controls: An observational study. BMC Neurology, 2016;16:108. DOI 10.1186/s12883-016-0624-1.
Schwartz CE, Rapkin BD, and Healy BC. Reserve and reserve-building activities research: Key challenges and future directions. BMC Neuroscience, 2016; 17:62. DOI 10.1186/s12868-016-0297-0.
Schwartz CE, Powell VE, and Rapkin BD. When Global Rating of Change contradicts observed change: Examining appraisal processes underlying paradoxical responses over time. Quality of Life Research, 2017;26:847-857. DOI 10.1007/s11136-016-1414-3.
Schwartz CE, Grover SA, Edwards K, Alper G, Banwel B, Breiner P, Gorman M, Graves J, Hart J, Lotze TE, Mar S, Mednick L, Ness J, Noguera AE, Quon E, Schreine T, Waldman A, Waubant E, Slater R, Powell VE, Yeh EA. Risk factors for non-adherence to disease-modifying therapy in pediatric multiple sclerosis. Multiple Sclerosis Journal, 2017;1-11. DOI: 10.1177/135245851769469.
Schwartz CE and Powell VE. The Performance Scales disability measure for multiple sclerosis: Use and sensitivity to clinically important differences. Health and Quality of Life Outcomes, 2017; 15(1):47.
Yeh EA, Grover SA, Powell VE, Banwel B, Edwards K, Gorman M, Graves J, Mah J, Mednick L, Obadia M, Slater R, Waldman A, Wauvant E, Schwartz CE. Impact of an electronic monitoring device and behavioral feedback on adherence to multiple sclerosis therapies in youth: Results of a randomized trial. Quality of Life Research, 2017. Published online first April 9. DOI 10.1007/s11136-017-1571-z.
Yeh EA, Chiang N, Darshan B, Najeti N, Grover SA, Schwartz CE, Slater R, Finlayson M, for the Pediatric MS Adherence Study Group. Adherence in youth with Multiple Sclerosis: a qualitative assessment of habit formation, barriers and facilitators. Qualitative Health Research, 2018; Jun 1: 1049732318779039.
Schwartz CE, Stark RB, Stucky BD. Response-shift effects in Neuromyelitis Optica Spectrum Disorder: A secondary analysis of clinical-trial data. Quality of Life Research, 2020; Dec 2:1-16.
Schwartz CE, Stark RB, Stucky BD, Li Y, Rapkin BD. Response-shift effects in Neuromyelitis Optica Spectrum Disorder: Estimating response-shift-adjusted scores using equating. Quality of Life Research, 2021. DOI: https://doi.org/10.1007/s11136-020-02727-8.
Schwartz CE, Rapkin BD, Bonavita S, Bossa M, Buscarinu MC, Grasso MG, Luca M, Nozzolillo A, Nocentini I, on behalf of the MS COVID Resilience Italian Study Group. The impact of COVID-19 on people with multiple sclerosis: A comparison of Italian and United States cohorts. Multiple Sclerosis and Related Disorders, 2022:63, 103888. DOI: https://doi.org/10.1016/j.msard.2022.103888.

Orthopaedics

Razmjou H, Schwartz CE, Yee A, Finkelstein JA. Traditional assessment of health outcome following total knee arthroplasty was confounded by response shift phenomenon. J Clinical Epidemiology, 2009; 62:91-96.
Schwartz CE, and Finkelstein JA. Understanding inconsistencies in patient-reported outcomes after spine treatment: Response shift phenomena. The Spine Journal 2009;9(12):1039-1045.
Finkelstein JA, Razmjou H, Schwartz CE. Response shift and outcome assessment in orhopedic surgery: Is there a difference between complete vs. partial treatment? Journal of Clinical Epidemiology, 2009; 62: 1189-1190.
Schwartz CE, Martha JF, Kowalski P, Wang DA, Bode R, Li L, Kim DH. Prospective evaluation of chronic pain associated with posteror autologous iliac crest bone graft harvest and its effect on postoperative outcome. Health and Quality of Life Outcomes 2009, 7:49 (29 May 2009).
Martha JF, Swaim B, Wang DA, Kim DH, Hill J, Bode R, Schwartz CE. Outcome of percutaneous rupture of lumbar synovial cysts: A case series of 102 patients. The Spine Journal 2009 Nov;9(11):899-904.
Kim DH, Schwartz CE. The Genetics of Pain: Implications for the Eavluation and Treatment of Spinal Disease. The Spine Journal 2010; 10: 27-840.
Razmjou H, Schwartz CE, Holtby R. Recalibration response shift had an independent impact on perceived disability two years following rotator cuff surgery. Journal of Bone and Joint Surgery, 2010;92:2178-2186.
Dai F, Belfer I, Schwartz CE, Banco R, Martha JF, Tighioughart H, Tromanhauser SG, Jenis LG, Kim DH. Association of catechol-O-methyltransferase genetic variants with outcome in patients undergoing surgical treatment for lumbar degenerative disc disease. Spine J. 2010 Sep 21. [Epub ahead of print] PubMed PMID: 20863768,
Kim DH, Dai F, Belfer I, Banco RJ, Martha JF, Tighiouart H, Tromanhauser SG, Jenis LG, Hunter DJ, Schwartz CE. Polymorphic Variation of the Guanosine Triphosphate Cyclohydrolase 1 Gene Predicts Outcome in Patients Undergoing Surgical Treatment for Lumbar Degenerative Disc Disease. Spine (Phila Pa 1976). 2010 Oct 1;35(21):1909-1914. PubMed PMID: 20838263.
Schwartz CE, Quaranto B, Samaha E, Kahn-Woods M. Relevance of lifestyle and attitudinal factors to spine surgery outcomes: Empirical results on a heterogeneous sample. Surgical Science, 2011; 2:121-126.
Seton M, Moses AM, Bode RK, Schwartz CE. Paget\'s disease of bone: the skeletal distribution, complications and quality of life as perceived by patients. Bone 2011;48(2):281-285.
Schwartz CE, Quaranto BR, Bode R, Finkelstein JA, Glazer PA, Sprangers MAG. Doing Good, Feeling Good, and Having More: Resources Mediate the Health Benefits of Altruism Differently for Males and Females with Lumbar Spine Disorders. Applied Research in Quality of Life, 2012;7(3):263-279.DOI 10.1007/s11482-012-9165-y.
Finkelstein JA, Quaranto B, Schwartz CE. Threats to the Internal Validity of Spinal Surgery Outcome Assessment: Recalibration Response Shift or Implicit Theories of Change? Applied Research in Quality of Life, 2013. DOI 10.1007/s11482-013-9221-2.
Schwartz CE, Sajobi T, Lix L, Quaranto BR, Finkelstein JA. Changing values, changing outcomes: The influence of reprioritization response shift on outcome assessment after spine surgery. Quality of Life Research, 2013; 22(9): 2255-2264.. DOI 10.1007/s11136-013-0377-x.
Schwartz CE, Ayandeh A, Finkelstein JA. When patients and surgeons disagree about surgical outcome: Investigating patient factors and chart note communication. Health and Quality of Life Outcomes, 2015, 13:161. DOI: 10.1186/s12955-015-0343-0. URL: http://www.hqlo.com/content/13/1/161.
Schwartz CE, Zhang J, Rapkin BD, Finkelstein JA. Reconsidering the Minimally Important Difference: Evidence of instability over time and across groups. The Spine Journal, 2019; 19:726-734. DOI: 10.1016/j.spinee.2018.09.010.
Finkelstein JA and Schwartz CE. Patient-reported outcomes in spine surgery: Past, Current, and Future Directions. Journal of Neurosurgery: Spine, 2019;; 31:155-164. DOI: 10.3171/2019.1.SPINE18770.
Schwartz CE, Stark RB, Balasuberamaniam P, Shrikumar M, Wasim A, Finkelstein JA. Responsiveness of standard spine outcome tools: Do they measure up? Journal of Neurosurgery: Spine, Published online February 21, 2020. DOI: 10.3171/2019.12.SPINE191367.
Schwartz CE, Stark RB, Balasuberamaniam P, Shrikumar M, Wasim A, Finkelstein JA. Moving toward better health: Exercise practice is associated with improved outcomes after spine surgery in individuals with degenerative lumbar conditions. Canadian Journal of Surgery, 2021;64(4):E419-E427.
Finkelstein JA, Stark RB, Lee J, Schwartz CE. Patient factors that matter in predicting spine-surgery outcomes: A machine-learning approach. Journal of Neurosurgery: Spine, 2020 Dec;4(1):1-11.)
Sniderman J, Stark RB, Schwartz CE, Imam H, Finkelstein JA, Nousiainen M. Patient factors that matter in predicting hip-arthroplasty outcomes: A machine-learning approach. Journal of Arthroplasty, 2021:36:2024-2032.
Schwartz CE, Rapkin BD, Sniderman J, Finkelstein JA. Appraisal and patient-reported outcomes following total hip arthroplasty: A longitudinal cohort study. Journal of Patient-Reported Outcomes, 2022;6:93. DOI: https://doi.org/10.1186/s41687-022-00498-z.
Schwartz CE, Rapkin BD, Borowiec K, Finkelstein JA. Cognitive processes during recovery: Moving toward personalized spine surgery outcomes. Journal of Personalized Medicine, 2022, 12, 1545. DOI: https://doi.org/10.3390/jpm12101545.
Balasuberamaniam P, Wasim A, Shrikumar M, Chen T, Anthony T, Phillips A, Nathens A, Chapman M, Crawford E, Schwartz CE, Finkelstein JA. Predictors of sacral ulcers in patients with complete spinal cord injury: A case-control study. BMC Musculoskeletal Disorders, 2023; 24:239. DOI:10.1186/s12891-023-06369-y.

Rheumatoid Arthritis

Schwartz, CE. Coping with Chronic Illness. [Doctoral Dissertation]. Boston, MA: Harvard School of Public Health, 1990.
Schwartz CE, Peng CK, Lester N, Daltroy L, and Goldberger A. Coping behavior in health and disease: Assessment with a card sort game. Behavioral Medicine 1998;24(1):41-44.
Schwartz CE and Daltroy LH. Learning from unreliability: The importance of inconsistency in coping dynamics. Social Science and Medicine 1999;48:619-631.
Ahmed S, Sawetsky R, Levesque JF, Ermann-Feldman D., Schwartz CE. Minimal Response Shift in the Absence of a Catalyst. Quality of Life Research, 2014. DOI 10.1007/s11136-014-0699-3.
Ahmed S, Sawetsky R, Levesque JF, Ermann-Feldman D., Schwartz CE. Minimal Response Shift in the Absence of a Catalyst. Quality of Life Research, 2014. DOI 10.1007/s11136-014-0699-3.

Renal Disease (End-Stage)

Schwartz CE, Merriman M, Reed G, and Hammes B. Measuring patient treatment preferences in end-of-life care research: Applications for advance care planning interventions and response shift research. J Palliative Medicine 2004; 7(2):233-245.
Phillips JM, Brennan M, Schwartz CE, Cohen LM. The long-term impact of dialysis discontinuation on families. Journal of Palliative Medicine 2005: 8 (1): 79-85.