DeltaQuest Foundation has a Scientific Advisory Board of experts in fields related to quality-of-life research. These colleagues provide advice and assistance when needed for scientific issues that arise in funded research. Our Scientific Advisory Board is comprised of:

Dr. Andrew Bottomley is a Research Psychologist with a career spanning over three decades. As the former Assistant Director of the European Organization for Treatment of Cancer (EORTC) and the Head of its Quality of Life (QOL) Department for 25 years. Dr. Bottomley is known for his role in shaping the landscape of patient-reported outcomes (PRO) research and clinical trials. Dr. Bottomley has designed numerous QOL tools and has been involved in the design of over 200 cancer clinical trials, consistently emphasizing QOL as a crucial endpoint. His expertise has been sought after by esteemed regulatory bodies such as the European Medicines Agency (EMA), the U.S. Food and Drug Administration (FDA), and also Health Technology Assessment (HTA) bodies, where he has provided guidance on PRO research methodologies, analysis and setting best practices. He has published over 250 peer-reviewed papers, six authored books, and 37 book chapters. Dr. Bottomley contributes as a peer reviewer on ten major editorial boards. He has played a pioneering role as the founding Editor for Expert Review of Pharmacoeconomics & Outcomes Research and continues to serve as a scientific advisor to the World Health Organization International Agency for Research on Cancer (WHO-IARC) and the European Union (EU). In 2023, Dr. Bottomley founded the Bottomley Consulting Group, an independent QOL Consulting Group.

Maria Orlando Edelen, Ph.D. is the Associate Director, Patient Reported Outcomes Value and Experience (PROVE) Center, at the Brigham and Women's Hospital Department of Surgery. She has more than two decades of experience applying Item Response Theory (IRT) methodology to instrument development, evaluation and modification. Dr. Edelen's recent work has focused on patient-reported outcomes, especially as they pertain to use in performance measurement for accountability. She received her doctorate and Master's degrees in Quantitative Psychology from the L.L. Thurstone Psychometric Laboratory in the department of Psychology at the University of North Carolina, Chapel Hill.

Lori Frank, Ph.D. is the inaugural President, Women's Health Access Matters, a non-profit organization dedicated to research funding and investment to improve women's health. Her career has focused on incorporating community perspectives in health research and health policy to advance public health and health equity. She serves on the Board of the Personalized Medicine Coalition and on the Medical, Scientific, and Memory Screening Advisory Board of the Alzheimer's Foundation of America. She is Past President of the International Society for Quality of Life Research, a professional society devoted to health outcomes assessment. She completed her Health and Aging Policy Fellowship through the Congressional Fellowship Program and prior to that she founded and served as Program Director of Evaluation and Analysis at the Patient-Centered Outcomes Research Institute (PCORI). She has held research and teaching positions with Georgetown University Department of Psychiatry, the National Institute on Aging, the New York Academy of Medicine, Medimmune LLC/AstraZeneca, and the VeteranÕs Administration. She completed postdoctoral training in Mental Health Services Research with the VA Health Services Research and Development program. Her PhD is in Human Development/Gerontology from the Pennsylvania State University and her MA is in Biopsychology from the Johns Hopkins University.

Brian Healy, PhD is an Associate Professor of Neurology at Harvard Medical School (HMS) and Associate Professor in the Department of Biostatistics at Harvard T.H. Chan School of Public Health (HSPH). He serves as the primary biostatistician for the Brigham Multiple Sclerosis Center at the Brigham and Women's Hospital (BWH) and is a consultant biostatistician for other research groups, including the Cardiac Psychiatry Research Program (CPRP) at Massachusetts General Hospital. He has published over 100 peer-reviewed articles focusing on statistical methods, epidemiology, and the immunologic, imaging, and cognitive aspects of multiple sclerosis. He is also active in teaching introductory statistics for numerous programs at HMS and HSPH.

Yuelin Li, PhD. is an Attending Behavioral Scientist at the Department of Psychiatry & Behavioral Sciences with a joint appointment at the Department of Epidemiology & Biostatistics, Memorial Sloan Kettering Cancer Center. Dr. Li received his PhD. in Psychology at Columbia University, then he went to Children's Hospital of Philadelphia for an Assistant Professor position before he moved to MSK. He has expertise in Item Response Theory, especially on Bayesian IRT. His current research focuses on innovations in analyzing Patient Reported Outcomes data using Machine Learning analytics, including Latent Dirichlet Allocation (LDA) and Bayesian Nonparametric (BNP) methods.

Bruce D. Rapkin, Ph.D. is Professor, Department of Epidemiology and Population Health, and Professor, Department of Family & Social Medicine, Albert Einstein College of Medicine. He is Co-Leader of and Associate Director for Community Outreach and Engagement and Co-Leader of the Montefiore Einstein Comprehensive Cancer Center Cancer Epidemiology Prevention & Control Program, and Associate Director of Community Outreach and Engagement Montefiore Einstein Comprehensive Cancer Center. A community psychologist, Dr. Rapkin's research focuses on building community-academic partnerships that can reduce barriers and improve standard of care.